Shannon trying to catch a snooze on his makeshift bed! This was where he and Kelly took turns sleeping each night...
The girls were soo excited to finally get to see Chelsea...somehow just seeing her made them feel better and Chelsea too! Laughter really is the best medicine...
When we came to visit Chelsea she felt well enough to go for a ride to the children's play center, Wow was it fun! The nurse even let Brooklyn & Halle ride in a wagon...they thought that was pretty cool! Chelsea got the best ride of all in her little wheel chair, while Kelly and I pulled "skinny" (her machine) alongside us and tried our best not to get all the tubes tangled up in her wheels! In the children's center we played with toys and got to make birthday cakes out of paper, glue and glitter!
As I watched Kelly with Chelsea the thought came to me, "I can do HARD things" I don't know a mother alive that doesn't ache when she sees her sick child and feel so helpless. Kelly has a very tender heart and such a sweet, sweet spirit. It was so hard for me to watch her try to tend to her helpless little girls needs. Kelly was so patient and loving towards Chelsea. I know our trials make us stronger....and as I watched her I realized, we can do HARD things!
Brooklyn & Halle are like sisters to Chelsea so it was very hard for my girls to picture Chelsea in the hospital and wonder if she was ok. They had alot of questions for me, but after we went to visit, they had even more! Like is it scary to ride in a wheelchair? Why do the nurses have to wear those funny masks when they clean Chelsea's stint? What are all those tubes she has hooked to her arms? What do all those machines do? And my favorite, why is her finger glowing red?
My twin sister Kelly's little Chelsea has been soo sick! For about 12 days she had a fever and aches. They would come and go day after day. Kelly took her to her primary care doctor 3 times. Each time the doctors would send her away telling her they couldn't treat it, it just needs to run its course. Finally the last time, they drew 4 vials of blood, and determined her white blood count was really high and her red count was low. (usually meaning she has got some kind of infection in her body). That night was Shannon's youngest brother Lance's wedding Thursday June 24th, Kelly got the news at the reception, just after family pictures and then took Chelsea up to Primary Children's Hospital. She showed up to the hospital looking beautiful in her long black gown and high heels! They had to give her scrubs to wear that first night until Shannon could bring her some normal clothes!They were amazing there and went to work trying to figure out what she had. After several days she was diagnosed with "Kawasaki disease". The hospital usually only sees about 30 cases of this a year, but each case is different. She had all the symptoms, high fever, aches and pains in her bones and joints, sores on her tongue, peeling skin under her finger nails, swelling in the blood vessels and inflammation that can lead to possible heart attack, and the white of her eyes were blood shot. She also started throwing up blood.
They had to give her 2 IVIG's. Its an immunoglobulin, to help people with auto immune disease. It's human plasma from like 50 different people to help build up the red blood cells in her body, to help fight off the infection.
The first one worked great but the second one had a reaction to her AB+ blood type, so she started going downhill with high fevers again. She lost a lot of blood through all this and also had to get 2 blood transfusions.
She stayed in the hospital for 10 days. So, after being sick at home for 12 days and another 10 days in the hospital, she finally came home yesterday on July 3rd. She still has a slight fever, but she had started eating and drinking again, so the doctors thought she was well enough to come home...Yea! Our prayers were answered, what a blessing! We love you Chelsea and we are soo glad that you are all better! :)












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