Sorry its been soo long since my last update...my how
time flies! So Jared had another round of
Chemotherapy. He started monday March 7th, it was only a
5 day cycle, finishing on friday..but instead of
170mg of Temodar a day (which is what he took the first round), they doubled it to
300mg of Temodar. We were thinking no big deal...he flew through the
chemo & radiation like it was nothing. But we were in for a
surprise...and not the
good kind! By thursday he started tasting a metal flavor in his mouth. It got worse over the next days and weeks, til he pretty much just stopped eating all together....I think he's lost almost
10 pounds.
But even worse he has been
sooooo tired. Tired like when you havent sleep all night and cant think straight. But for Jared he was sleeping
all the time! The worst days were probably the end of last week. thursday, friday and saturday I think he was asleep longer than he was awake. It was
killing him. And I worried about him driving to work and stuff. It made me really stop and think about how you always hear people say....if the
cancer dosent kill them, the
chemotherapy will. It literally
zapped the life right out of him. It was
soo hard to see him go from doing soo well, happy & motivated, to soo tired that he was a
zombie, not functioning and when he was awake, he was down about how
tired he felt all the time.
Then on saturday night, he started feeling
itchy all over. His head, his back, his arms, everything itched. He started putting anti-itch cream on, but that only locked in the heat and made it
worse. By sunday morning we were calling the pharmacy, he said its probably a reaction to the Temodar, so they had him take Zyrtec and it helped.
So fast-forward to today, tuesday...I think I
finally have my husband back
YEA! Although he says his food still tastes weird, he is eating again. And even better, he only slept for about an hour today!We will go back to Huntsman next tuesday, March 29th, have more blood drawn, and get a prescription for another month of Chemotherapy. Yuck! Dr. Coleman wants to up his dose
again, this time to 400mg per day, but I say no way!! Hopefully he will let him take a lower dose for more days or something. At least until his body can adjust to the posion he's putting in it! Another option is to reduce the anti-sezure medicine he's on. That slows your brain down too and can make you tired. Its a double edged sword! Hopefully we can get some answers next week when we go!